You're so vein...
Jan. 21st, 2012 10:54 am![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
nursedarryThank you to everyone who has left messages. cards and v gifts; it made the last few days go by quicker and kept me smiling.
I've had my trans-oesophogeal echo (which was bloody awful) and an angiogram (which wasn't; it was cool).
Here's the update:
♥ My mitral valve needs repairing/replacing (they'll know which when they get in there).
♥ At least one of my pulmonary veins (the tubes that lead back from the lungs to the heart with oxygenated blood) is connected to my RIGHT atrium, not my left, where it should be. I think the docs were as surprised as I was when they saw that.
Next up, an MRI on my heart to find out exactly how many of my pulmonary veins are connected to my right atrium. Shortly after that, I'll have my endoscopy to see if I do or do not have a hiatus hernia - docs now aren't sure I do, but if I do, I can start treatment for that.
Then it's on to the London Heart Hospital for the operation to fix the valve and move the pulmonary vein(s) to where they should be. This will require two surgeons, so my surgery date will depend on when they're both available.
In the meantime, I'm on a very large cocktail of drugs to keep me from getting too short of breath, keep my fluid levels down, thin my blood, keep my heart in a regular rhythm, and best of all, keep me pain-free.
These are hereditary conditions, so I'm going to send all my notes to my sis and she'll see a cardio asap, and so will my kids. I've managed to make it to 45, carry twins and teach aerobics without this being a problem, so it could very well be masked in them.
I'm barely making it up my stairs these days, and am very tired. But I don't feel particularly frightened, just so much better to finally have a diagnosis.
![[livejournal.com profile]](https://www.dreamwidth.org/img/external/lj-userinfo.gif){kind=small}
taradiane, I'll be spamming you.
(no subject)
Date: 2012-01-21 11:20 am (UTC)(no subject)
Date: 2012-01-21 11:28 am (UTC)Honey you're amazingly strong. Like you said, 45 and TWINS. how many people can say that? My candle is burning for you, but I'm sure you won't be needing it. Because Iknow you ♥
(no subject)
Date: 2012-01-21 11:30 am (UTC)I've got my fingers crossed for good news for your sister and kids.
*hugs*
(no subject)
Date: 2012-01-21 11:40 am (UTC)Let me know if there is anything you need.
(no subject)
Date: 2012-01-21 11:46 am (UTC)(no subject)
Date: 2012-01-21 12:51 pm (UTC)I will email you with a demand for an address so I can knit you something amusing and actually send it to your house rather than filling a box with sweets, forgetting to ask for your address and then eating them. Which has totally never happened.
Certainly not more than once.
LOVE YOU LOTS, GET WELL! STOP OVERACHIEVING AT ILLNESS!
(no subject)
Date: 2012-01-21 01:18 pm (UTC)(no subject)
Date: 2012-01-21 01:20 pm (UTC)Get better soon. *squishes you*
(no subject)
Date: 2012-01-21 01:46 pm (UTC)Best of luck to you. We'll all be thinking of you.
(no subject)
Date: 2012-01-21 01:51 pm (UTC)I am trying to drink all of my alcohol and yours, too, so tell them to speed this stuff up before my liver goes.
*TACKLEHUGS FOREVER*
(no subject)
Date: 2012-01-21 02:03 pm (UTC)I'm hoping the very best for you, and it sounds like you're in good hands. Of course, we're all anxious, now, to hear about your surgery dates, so I hope you'll keep us updated. Take care of YOU and remember we all love you!!!!!!!!!!!!!!!!!!
(no subject)
Date: 2012-01-21 02:29 pm (UTC)(no subject)
Date: 2012-01-21 02:52 pm (UTC)Get better soon, lovely ♥
(no subject)
Date: 2012-01-21 03:06 pm (UTC)I looked at the picture on Wikipedia and it just looks like a big bundle of snakes to me, but I'm SO very glad that you have an accurate diagnosis. (BTW, Spouse says he's jealous because at least you know what it is, unlike his still-unidentified issues LOL!) Good that you're feeling comfortable (i.e. not scared) -- take it VERY VERY easy, really baby yourself. I'm petitioning the gods for an early surgery date for you and if they know what's good for them they better listen >:|
(no subject)
Date: 2012-01-21 03:11 pm (UTC)(no subject)
Date: 2012-01-21 03:15 pm (UTC).
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And yes, everyone else, I am kidding. I think it's a 'truth universally acknowledged' that I love the good nurse more than life itself!!
(no subject)
Date: 2012-01-21 04:14 pm (UTC)Take care bb! Glad you have a diagnosis and that it's curable *smooches and gentle hugs*
(no subject)
Date: 2012-01-21 04:15 pm (UTC)(no subject)
Date: 2012-01-21 04:18 pm (UTC)(no subject)
Date: 2012-01-21 05:17 pm (UTC)(no subject)
Date: 2012-01-21 05:41 pm (UTC)(no subject)
Date: 2012-01-21 05:56 pm (UTC)Best wishes~ *gentle hug*
(no subject)
Date: 2012-01-21 06:15 pm (UTC)(no subject)
Date: 2012-01-21 06:19 pm (UTC)And yes, you've made it SO FAR and you are doing so well. And now you are in proper care and will receive the best treatment. *hugs and hugs*
Take VERY good care and please use this opportunity shamelessly to tell us all what you would like during your convalescence!!! *more hugs*
(no subject)
Date: 2012-01-21 07:23 pm (UTC)(no subject)
Date: 2012-01-21 08:05 pm (UTC)(no subject)
Date: 2012-01-21 08:15 pm (UTC)(no subject)
Date: 2012-01-21 09:26 pm (UTC)(no subject)
Date: 2012-01-21 09:44 pm (UTC)(no subject)
Date: 2012-01-21 10:51 pm (UTC)Glad you have the diagnosis and a course of treatment laid out. Here's hoping surgery can happen soon and you can start on the road to recovery.
♥
And YES for you telling your sis about it.
(no subject)
Date: 2012-01-21 11:11 pm (UTC)(no subject)
Date: 2012-01-21 11:32 pm (UTC)I hope you get to feeling better soon! All my thoughts and prayers are with you.
(no subject)
Date: 2012-01-21 11:34 pm (UTC)(no subject)
Date: 2012-01-22 02:33 am (UTC)(no subject)
Date: 2012-01-22 02:52 am (UTC)Also - will be hanging out in your neck of the woods in late March/early April. Perhaps we'll be able to meet up, assuming you're feeling up for it!
(no subject)
Date: 2012-01-22 08:51 am (UTC)(no subject)
Date: 2012-01-22 07:08 pm (UTC)I was thinking about you today, and am glad
you left this update. Your achievements are
outstanding, you have such a love of life.
I continue to send you good thoughts your
way.
(no subject)
Date: 2012-01-22 08:04 pm (UTC)My thoughts are with you!
(no subject)
Date: 2012-01-22 10:34 pm (UTC)(no subject)
Date: 2012-01-23 01:33 am (UTC)(no subject)
Date: 2012-01-23 10:36 am (UTC)It's so hard to get good plumbing done these days - but I'm wishing a speeding schedule and resolution for you. If they manage to get the hoses plugged into the correct spots, you might not know yourself!
*hugs and love*
Bring on ALL THE DRUGS!
(no subject)
Date: 2012-01-24 02:29 pm (UTC)(no subject)
Date: 2012-01-25 01:04 am (UTC)(no subject)
Date: 2012-01-25 06:08 pm (UTC)Hope this surgery happens very soon...for all our sakes. We are worried, lady, but it's damned good to know and then to also know next-steps.
LUFFS! Tiger
(no subject)
Date: 2012-01-26 08:24 am (UTC)I hope your sister & your children are well & remain so.
(no subject)
Date: 2012-02-11 11:15 am (UTC)I hope you get it sorted soon! *gentle hugs*
(no subject)
Date: 2012-02-16 01:35 pm (UTC)